Covid-19 For Patients With Vasculitis

UK and Ireland Vasculitis Society (UKIVAS). The UKIVAS (UK and Ireland Vasculitis Rare Disease Group) Registry is a collaboration between patients, clinicians and scientists to create the first comprehensive database of vasculitis patients in the UK and Ireland. For current information on COVID19 and vaccines please click on link.

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International Vasculitis Day 15th May

This year we are combining with ERN RITA to hold  Vasculitis Question Time 12noon -1pm

where we will have Prof Alan Salama(Royal Free Hospital, UK), Dr Karl Gisslander,( Lund University Hospital, Sweden) Dr Sarah Moran (Cork University Hospital, Ireland) and Julie Power (Vasculitis Ireland Awareness) on a panel answering frequently asked questions posed by Dr Margaret Dunne (Co ordinator of the Future-Vasc project,TCD).

To register click on the link below

https://register.gotowebinar.com/register/4508915097613064544

To avoid Zoom bombing we would ask that you post your name when joining, so we do not eject you from the meeting.

 

What is Vasculitis?

Vasculitis is a family of rare diseases that can affect people of all ages.

Vasculitis means inflammation of the blood vessels, arteries, veins or capillaries. When such inflammation occurs, it causes changes in the walls of blood vessels, such as weakening and narrowing that can progress to the point of blood vessel blockage.

A result of Vasculitis is that the tissues and organs supplied by affected blood vessels do not get enough blood. This can cause organ and tissue damage.

The purpose of Vasculitis Ireland Awareness is to offer support and information to patients and family members where needed.

Charity Number  NIC105731

RCN20204769   

HMRC Number XT34911 

Registered on Orphanet

Vasculitis International

Member of Vasculitis International

 

 

    Vasculitis Ireland Awareness is a non-profit organisation…

      We rely solely on volunteers and charitable donations in order for our organisation to operate, help us to help others!

VIA is a support group set up for patients of all the Vasculitis diseases, their carers and interested Healthcare Professionals in Ireland.

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In most cases, the cause of Vasculitis is unknown. A combination of factors can cause the inflammatory process to be set in motion. Vasculitis is an autoimmune disease and for reasons that are not yet understood, these diseases occur when the body mistakenly...Learn More

We hold regular meetings online for like minded people to come together and discuss their conditions, treatments and offer support, in a relaxed environment. Patients and all family welcome. Contact us for more information, times and locations...Learn More

 

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